Today’s post is a story from the UK about Heather, a friend of mine, who was featured in Pick Me Up magazine. She is one of life’s real superstars as she is raising awareness about the condition dystrophic epidermolysis bullosa – sometimes abbreviated to DEB or EB – which she was first diagnosed with shortly after birth.
Quick Facts from the Dystrophic Epidermolysis Bullosa Research Association:
- Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder
- Prominent symptoms include extremely fragile skin that blisters and tears from minor friction or trauma
Heather has an extremely positive vibe that is infectious to those around her – so I thought I would share her article and spread that positivity worldwide! Hurrah!
If you want to know more about DEB/EB or wish to share the information, please follow the links below, and if you are feeling generous, there is a donate option on each website too 🙂
Thanks for reading!