Raising Awareness of EB (Epidermolysis Bullosa)

Today’s post is a story from the UK about Heather, a friend of mine, who was featured in Pick Me Up magazine. She is one of life’s real superstars as she is raising awareness about the condition dystrophic epidermolysis bullosa  – sometimes abbreviated to DEB or EB  – which she was first diagnosed with shortly after birth.

Quick Facts from the Dystrophic Epidermolysis Bullosa Research Association:

  • Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder
  • Prominent symptoms include extremely fragile skin that blisters and tears from minor friction or trauma

Click on the picture for a claer read/look

Heather has an extremely positive vibe that is infectious to those around her – so I thought I would share her article and spread that positivity worldwide! Hurrah!

If you want to know more about DEB/EB or wish to share the information, please follow the links below, and if you are feeling generous, there is a donate option on each website too 🙂

Thanks for reading!

DEBRA of the UK (Dystrophic Epidermolysis Bullosa Research Association)

DEBRA of America


2 thoughts on “Raising Awareness of EB (Epidermolysis Bullosa)

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s