Raising Awareness of EB (Epidermolysis Bullosa)

Today’s post is a story from the UK about Heather, a friend of mine, who was featured in Pick Me Up magazine. She is one of life’s real superstars as she is raising awareness about the condition dystrophic epidermolysis bullosa  – sometimes abbreviated to DEB or EB  – which she was first diagnosed with shortly after birth.

Quick Facts from the Dystrophic Epidermolysis Bullosa Research Association:

  • Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder
  • Prominent symptoms include extremely fragile skin that blisters and tears from minor friction or trauma

Click on the picture for a claer read/look

Heather has an extremely positive vibe that is infectious to those around her – so I thought I would share her article and spread that positivity worldwide! Hurrah!

If you want to know more about DEB/EB or wish to share the information, please follow the links below, and if you are feeling generous, there is a donate option on each website too 🙂

Thanks for reading!

DEBRA of the UK (Dystrophic Epidermolysis Bullosa Research Association)

DEBRA of America

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2 thoughts on “Raising Awareness of EB (Epidermolysis Bullosa)

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